tag:blogger.com,1999:blog-7157112514969734133.post4729992957471292253..comments2023-06-27T03:22:12.461-07:00Comments on Allie's Abnormal Appetite: Abnormal Blood WorkJodihttp://www.blogger.com/profile/08333868934527759664noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-7157112514969734133.post-90843811714457237412013-01-25T09:56:28.374-08:002013-01-25T09:56:28.374-08:00Hey Jodi, I know it's been a while since you p...Hey Jodi, I know it's been a while since you posted your last update, but my son and another little girl in Atlanta present the same way as your daughter. I'd/we'd love to find out how things are going now? What you guys have found out about Allie's metabolic condition? Familyof5https://www.blogger.com/profile/16714011066957385317noreply@blogger.comtag:blogger.com,1999:blog-7157112514969734133.post-1553157078936153922012-05-16T08:20:48.018-07:002012-05-16T08:20:48.018-07:00Wow...i just received very similar results from my...Wow...i just received very similar results from my sons testing. He is 5 and has had a feeding tube for 3 years, with only a diagnosis of failure to thrive. I would love to talk with you more about our children! <br />-ShaunaShauna Harrellnoreply@blogger.comtag:blogger.com,1999:blog-7157112514969734133.post-57895615395084118052012-03-30T11:48:14.078-07:002012-03-30T11:48:14.078-07:00Hello Jodi - Was wondering if you have heard anyt...Hello Jodi - Was wondering if you have heard anything more about your daughters blood/urine work ups? My daughter labs came back with the same exact thing: ABNORMAL. Severe Ketonemia suggesting catabolic state."<br />She has a f/u in June with the doctors. They said for now, just keep doing what I've been doing. What are they not telling me? Hope all is well with you and Allie. :)Staceynoreply@blogger.comtag:blogger.com,1999:blog-7157112514969734133.post-53370242260183215442012-02-10T06:13:39.781-08:002012-02-10T06:13:39.781-08:00Hello - thanks for brining up eosinophilic esophag...Hello - thanks for brining up eosinophilic esophagitis. Allie has actually been tested for it. Back in 2009, her first endoscopy showed several eosinophils but not a ton. Her second and third endoscopy didn't show any. We will see what her fourth endoscopy shows next Friday. Allie was seen by an ENT and Allergist doctor and they also ruled out EE. Of course it's always still in the back of my mind so they always take biopsies when they do the endoscopy. Praying they don't find any eosinophils this time either! Thanks again!!!!!!Jodihttps://www.blogger.com/profile/08333868934527759664noreply@blogger.comtag:blogger.com,1999:blog-7157112514969734133.post-60641465842984694342012-02-09T22:09:34.081-08:002012-02-09T22:09:34.081-08:00Hi Jodi, sorry to hear about your daughter's s...Hi Jodi, sorry to hear about your daughter's struggles. I wonder if her doctors have ever considered eosinophilic esophagitis? Granted there aren't many treatment options for this diagnosis, but to at least be able to put a name on the disease would be worth something.Anonymousnoreply@blogger.com