Allie's Abnormal Appetite: Pictures

Allie during her gastric emptying test

Allie at the Children's Hospital of Wisconsin December 2009

December 2009 - Allie right after her peg tube surgery

Chloe & Allie - Easter 2010

Jodi, Matt, Chloe & Allie - Easter 2010

Quick Update

To see Allie's full story, please click on "Allie's Story" above.

Allie is currently g-tube fed because of her refusal to eat. She has every ability to eat orally but refuses. As of today, the doctors are not able to diagnose Allie and they have no idea why she will not eat.

Update 6/24/11: We are attempting our first tube wean for Allie. We are doing it on our own and have stopped all of her tube feeds cold turkey. Her feedings stopped on June 24, 2011. I will be keeping her blog updated with her tube weaning status.

Update 5/24/11: We have done an oral corn trial with Allie for a month and there has been no signs of a corn allergy. Dr. Edmonson has confimred that Allie's patch allergy test provided a false positive result. With this, Allie is now able to eat corn products. We started Allie on a blenderized diet and removed enteral formula from her feeds. Allie has been vomit free since January 2011. Allie is doing amazing and is finally gaining weight.

Update 12/22/10: Allie was diagnosed with a severe allergy (Type IV delayed reaction) to corn and a gluten sensitivity. All of Allie's milk we have been feeding her through her tube has corn in it. According to our ENT doctor, this severe corn allergy could have caused enough damage to her GI track that it has forced Allie to not eat. We are now working on getting Allie corn and gluten free and seeing what happens. In my heart, I do not feel this is Allie's underlying problem but time will tell.

Our journey with Allie has been challenging, mentally draining, frustrating and yet full of joy, excitement and love. We wouldn't want it any other way.

Thank you for following Allie's journey and we hope one day we can post that she is tube free!!

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