Thursday, September 29, 2011

Overdue Update

It's been a while since I"ve updated - seems as if time is going bye too fast. 

Allie is doing well.  Since our appointment at Children's Hospital the beginning of the month, we are slowly increasing her volume intake.  She was at 4 oz for each feeding and she is now up to 5 oz.  It's taken us a long time to get her here and there are times when I get done feeding her that she's gagging and telling me I fed her too much.  She doesn't actually throw up but it's close.  5 oz is the most she has ever been able to handle at a time - for her age, she should be able to easily handle 8-9 oz.  We will continue to work on it because if sometime down the road we want to enroll her in the two week feeding intervention, she needs to be able to handle more than 5 oz of food at a time.

Besides increasing her feeds, she is just getting over strep throat.  She had a nagging cough about a week or so ago.  I decided to bring her in and have her checked because she never shows normal signs of strep throat.  Sure enough, positive.  Good ole antibiotics took care of it though and she's feeling great.  Chloe also had it but she's better now too.

We are gearing up for next week.  We are heading to Children's Hospital of Wisconsin for testing for Allie.  She will have to be at the hospital Tuesday, Wednesday and Thursday for testing.  Allie will be getting a gastric emptying test (with her BD) and also an intestinal transit test.  She will also get an endoscopy with biopsies and a botox injection in her pyloric valve.  Praying the week goes smoothly :)

On a very positive note, Allie seems to be eating a little bit more these days.  She's really into the growing big scheme so every bite she takes, she climbs on the counter and says, "look how big I'm getting mom". She's so stinken cute!!!  It's nice to see her associate eating with getting bigger and stronger.  However, her growth is still a bit slow and the weight gain continues to be a struggle.  We'll get her there though.

Thanks for checking in and please keep Allie in your prayers for next week while she goes through additional testing, procedures and especially anesthesia.

Here are a couple pictures of the girls playing in the rain :-)








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