Monday, May 16, 2011

Coo Coo for Corn

It has been a little over a month that Allie has been consuming corn products for her oral challenge.  She first started eating corn products orally and then I started adding corn products into her blenderized food.  Within this past month, we have seen slight changes in Allie but for the better.  Her behavior has remained consistent (strong willed & stubborn), her sleeping has improved, still vomit free and her oral intake has improved.  Not sure if allowing her to eat corn again has anything to do with her sleeping better and eating more but those are both improvements so we'll take them.

I have made the decision to take cows milk out of Allie's blenderized food.  I am using Silk soy milk as the substitute.  According to one of Allie's allergy tests, she could be allergic to milk but they aren't sure.  It has been almost a week that I have taken cows milk out of her blends and so far we haven't seen any change.  We will try this for 3 weeks to see if we see any difference in her.  If nothing changes, we will assume that Allie is not allergic to milk.  Most likely she isn't but having 1 positive allergy test (and 3 negative) makes me question it.

Allie continues to do great with all her feedings and she's gaining weight slow and steady.  She will be going for a weight check again in a week or so.  I have been weighing her on my home scale and it shows she's over 26 pounds - that's a huge accomplishment for her.    Things are going well with all of her feedings, it's hard to imagine the days of constant vomiting with her feeds.  I feel so sorry for the parents that continue to struggle with their child vomiting because of tube feedings.  Out of everything Allie has been through, dealing with a year of constant vomiting had to be the worst part.  Her and I were both extremely miserable and no matter what we tried, the vomit never stopped - that is, until we tried the blenderized diet. 

Thanks again for following Allie's progress.  We continue with speech therapy and feeding therapy.  3 days a week of therapy is getting old but I know it could be worse.  To try and keep Allie's life "normal", she is going to start dance lessons this summer and if she likes it, she will continue with it in the fall.  My guess is she going to love it - she's quite the little dancer.  She would always come with me to Chloe's dance class and Allie would learn the dances just as well as everyone else.  When it was Chloe's dance review, I couldn't keep Allie out of the isle in the theatre, she danced almost the whole show.  So, to say I think she's going to love dance class is kind of an understatement.

Here is a picture of our silly girls.....


  1. That picture of the 2 of them is so cute, I can't help but smile.

  2. I'm so happy that I came across your blog. It's only the second one I've found about a child with a GJ tube! My daughter is 18 mos and had an NG for 6 1/2 mos, G for 2 1/2 mos and has had a GJ tube for 7 mos. Of course I am sorry that your family is going through this challenge, but I'm so grateful every time I find other people whose struggles I can relate to! You have a beautiful family!