If you haven't done so already, please check out our Feeding Tube Awareness website. This site provides a lot of great information about feeding tubes, why children need them, how they work, what medical tests some children get done before getting their tube and the list goes on and on. Allie's picture and story is listed under "tubie kids" and I also provided information on gastric emptying tests and allergy testing under the "tests" section on the site. Check it out - I promise you will find great information and you will learn something new! You can find the website at: www.feedingtubeawareness.com
The goal for Feeding Tube Awareness is to spread awareness and to educate as many people as possible through facebook status posts, twitter, blog posts, email...basically however you can help spread the word.
There will be a new topic everyday to help raise awareness. I personally will be blogging each day on the topic to help spread positive awareness. Here are the scheduled topics.
February 6th - Video Launch - Why does your child have a feeding tube?
February 7th - Before and after the tubie (post pictures or a photo album). What is the most positive benefit your child has received because of tube feeding?
February 8th - Addressing misconceptions. What do you want people to know about tube feeding?
February 9th - Call to action - emailing Sesame Street. How would you like to help raise awareness about tube feeding?
February 10th - Engaging friends and family. GO AHEAD AND ASK ME. What do you want to know about tube feeding that you have been afraid or uncomfortable asking?
February 11th - Turning a negative into a positive. Describe a negative experience you encountered because of tube feeding and explain how it could have been more positive. What should have happened?
February 12th - Wrap-up. Describe a positive experience you have encountered because of tube feeding and what made it positive for you and/or your tubie?
So, make sure to check back starting February 6th - let's all work together and help spread awareness. Everyone wants their child to be accepted by their peers. Allie will be starting preschool next year and I'm scared of how other children will accept her. Please - for Allie and all the other little children with feeding tubes, help spread positive awareness. The feeding tube is an amazing medical device that is saving a lot of precious kids!!!
**To Shannen in Scotland.....thank you so much for your email and sharing your story. I hope you will continue to follow my blog and I hope it helps you better understand feeding tubes. Please feel free to contact me at anytime with questions. Good luck to your cousin and he will be in my prayers!
As always, here are a couple recent pictures of the girls - enjoy!
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| Allie showing off her necklace she is making - this is the "Beads for Good Behavior" project we are doing. |
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| Chloe showing off her necklace too! |
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| 1, 2, 3 - Strike a pose! |
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