Since the probiotics are working, we have come to the conclusion that Allie's body was not able to reproduce good bacteria in her system. She was on an antibiotic for Scarlet Fever about a month or so ago. This antibiotic killed all the good and bad bacteria in her system and for some reason, her system could not produce the good bacteria again so it was affecting her whole digestive system. The probiotics have now helped and we are assuming the "good" bacteria is back in her system full force.
Last week when the nurse called about Allie's preliminary stool results, she said that the fat content in her stool was high. This would mean she had some type of absorption problem. However, the nurse has since called back and apologized because she had given me the wrong information. The fat in Allie's stool is considered "normal". That is one less thing to worry about, however I was hoping that this one piece would help us find an actual diagnosis as to why Allie will not eat.
Poor little Allie - if it's not one thing it's another. Seems as if there is always something she is dealing with and there is always an unknown lurking above our heads. When I say unknown I don't mean the big medical mystery as to why she doesn't eat - I'm referring to all the little things that accompany a child with special needs. Her feeding tube in itself is a challenge but we also struggle with her vomiting, pooping, her post traumatic stress syndrome, continual doctors appointments, occupational therapy, speech therapy, oral eating therapy and mental health therapy. There is no doubt, Allie has a full plate and so do we.
We meet with our GI doctor (still getting 3rd opinion) again on Monday at 9:00. I will have my long list of questions ready for him. Dr. Brown scheduled us into two time slots so I'm assuming the appointment will be lengthy. We should be able to determine what tests we want to run and when. I'm just praying this 3rd opinion and round of tests help us get Allie a diagnosis as to why she will not eat.
|This picture has nothing to do with this post but I wanted to share it because it's one of my favorites of the girls.|
Nothing could be worse than the fear that one had given up too soon, and left one unexpanded effort that might have saved the world.